How High Can You Jump?

So, things are moving a little faster than anticipated.  Last week, I stated we hoped to go out of town soon for my son's treatment. Within TWO HOURS of posting last week's blog, I had a call from the hospital. "Can you come see us next week?"

Next WEEK? Are you KIDDING ME? Do you realize we live 2,000 miles away????

It's really amazing how things can come together in just a few days with less than 10 days warning. People have stepped up to help us out, which has been the biggest blessing of all. I've been truly stunned and humbled by the assistance we've received. It's made a stressful time less-so.

Photo by Vox EFX

I'm a little anxious about the trip... mostly because I've read too many horror stories about the TSA, so the thought of going through security with 2 strong-willed kids, and a headstrong momma (me), I'm a bit afraid something will happen that will make the news.

Seeing the doctors, being on the plane, that doesn't bother me. Being subjected to something that in my mind is a direct violation of my 4th Amendment rights (that's the one about illegal search and seizures, folks) puts me on edge. Heck, with my background, I should be scared of being on an airplane. My dad has worked for one of the airplane manufacturers for most of my life in the department that fixes crashed airplanes, so I've seen more crash photos than the average person. (I am also more than aware that the most dangerous place for a plane is on the ground--not in the air. More damage is done by stupid ground people than pilots that have been drinking too much. Maybe sometime, I'll tell you my favorite story that my dad repeated to me, about a "crash" on the ground...)

Really, I'm glad that we're going out now rather than later. Waiting makes me nervous. But, it does make me concerned that they felt so strongly about his case that they felt the need to get us in this soon. Maybe it's not as serious as I'm fearing, maybe they're just being pro-active. (Please, please, please let this be the case!) Still, I'll be glad when we're back on the ground in good ol' Kansas City...

Until next time,

Liberty

P.S.: I've received a lot of questions about how people can support us during this time. Prayers are always welcome! But, additionally, if you're between 18 & 44 and in generally good health, you can get tested to become a potential donor. Search for a donor drive at this link, request a test kit here, and maybe even consider hosting a donor drive! Marrow.org has additional information, just surf the site and see what's there! Also, if you know a woman about to have a baby, urge her to donate her umbilical cord blood for use in transplants (and for research.) -- LS

Topsy-Turvy

The last ten days have been anything but normal. And, the news TMOTH and I got last week has definitely turned our world on its ear.

Our son is headed for bone marrow transplant.

When I got the news a week ago, I fell apart. My world has been rocked. How could this bubbly, hyperactive, absolutely most adorable little boy in the world need such a risky procedure?

But, at this point, he does. We've got a lot of steps to go through before the ultimate decision will be made. And, we have to find a donor--it's not certain any of his immediate family will be a match. The likelihood is 25% for his sister, and 2% for both TMOTH and me--29% chance that one of the three of us will match.

The dust is just starting to settle and I can think straight again after getting the call last Tuesday. But most of my energy is being spent trying to figure out what's next, and looking down the road to the next few stages of treatment. Still hoping that when we go in to do another biopsy prior to transplant that the numbers have changed and we can hold off. I'd rather deal with biopsies every 3, 6, or 12 months than transplant.

I don't know what this means for my blog, or even my writing in general. I know I'll need to write to deal with the stress. And it seems like I've had three major things happen in just the last few weeks: first, deciding it was time to say goodbye to "Homebody" and move on; second, a personal decision to work on something I'd been struggling with for a long time; now, this. All in a matter of just a few weeks.

I'll check in when I can, try to post as I'm inspired or led... and this blog may turn into more of a journal of our journey, at least for a while.

Thank you, loyal readers, for any prayer you happen to send my family's direction.



PS: If you should feel so led, please consider becoming a marrow donor. It's an easy, painless process to get on the registry (although there is a small fee unless it's associated with a donor drive). Please check out Marrow.org for more information. -- LS