Monday, August 27, 2012

Topsy-Turvy

The last ten days have been anything but normal. And, the news TMOTH and I got last week has definitely turned our world on its ear.

Our son is headed for bone marrow transplant.

When I got the news a week ago, I fell apart. My world has been rocked. How could this bubbly, hyperactive, absolutely most adorable little boy in the world need such a risky procedure?

But, at this point, he does. We've got a lot of steps to go through before the ultimate decision will be made. And, we have to find a donor--it's not certain any of his immediate family will be a match. The likelihood is 25% for his sister, and 2% for both TMOTH and me--29% chance that one of the three of us will match.

The dust is just starting to settle and I can think straight again after getting the call last Tuesday. But most of my energy is being spent trying to figure out what's next, and looking down the road to the next few stages of treatment. Still hoping that when we go in to do another biopsy prior to transplant that the numbers have changed and we can hold off. I'd rather deal with biopsies every 3, 6, or 12 months than transplant.

I don't know what this means for my blog, or even my writing in general. I know I'll need to write to deal with the stress. And it seems like I've had three major things happen in just the last few weeks: first, deciding it was time to say goodbye to "Homebody" and move on; second, a personal decision to work on something I'd been struggling with for a long time; now, this. All in a matter of just a few weeks.

I'll check in when I can, try to post as I'm inspired or led... and this blog may turn into more of a journal of our journey, at least for a while.

Thank you, loyal readers, for any prayer you happen to send my family's direction.



PS: If you should feel so led, please consider becoming a marrow donor. It's an easy, painless process to get on the registry (although there is a small fee unless it's associated with a donor drive). Please check out Marrow.org for more information. -- LS

1 comments:

K.M. Weiland said...

Hang in there. One step at a time, one day at a time. You and family will get through this. You already know you have my prayers. If you ever need anything else I can help with from way over here, all you have to is holler.

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